Help shape bereavement services across Waltham Forest, Redbridge and West Essex

When somebody important in your life dies, it can have an impact on your feelings - sometimes a powerful and long-lasting impact. It can also affect your wider life, for example, at work or school, your family life, financial security or where you live.

We want to hear from people in Waltham Forest, Redbridge and West Essex who have lost someone close to them about their experiences, feelings and needs around bereavement and grief, to help us put the right support in place. If you have been bereaved or know that you are about to be, would you be willing to take our confidential survey?

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* 1. Which area do you live in?

Redbridge

Waltham Forest

West Essex

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* 2. Is the person who is dying or who who died your...?

Partner, eg husband, wife, long term relationship

Parent

Brother or sister

Child, under 18 years

Child, aged 18 and over

Beloved neighbour/community connection

Other close relative or loved elder

Close friend

Your carer

Close colleague/business partner

More than one person, please describe below

Other (please specify)

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* 3. How long have you been bereaved?

I am expecting a bereavement of someone close to me

Up to three months

Up to a year

Up to two years

Up to five years

Up to 10 years

More than 10 years

More than 20 years

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* 4. Do you or did you feel supported by friends and family following the death of the person you were close to?

Very well

Quite well

Not so well

Not at all

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* 5. What would make or would have made the biggest difference to you from friends/family/community at the time?

Practical everyday support such as with food and childcare

Understanding from school or college friends

A culturally appropriate response

Financial advice and support

Listening and emotional support – someone being there for you

Other (please specify)

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* 6. Do you or did you feel you were supported by professionals or organisations in the lead up to and following the death of the person close to you?

	Very well	Quite well	Not so well	Not at all	Not appropriate
Your GP	Your GP Very well	Your GP Quite well	Your GP Not so well	Your GP Not at all	Your GP Not appropriate
Other health professionals at your GP practice	Other health professionals at your GP practice Very well	Other health professionals at your GP practice Quite well	Other health professionals at your GP practice Not so well	Other health professionals at your GP practice Not at all	Other health professionals at your GP practice Not appropriate
Hospital/hospice doctor/s and nurses	Hospital/hospice doctor/s and nurses Very well	Hospital/hospice doctor/s and nurses Quite well	Hospital/hospice doctor/s and nurses Not so well	Hospital/hospice doctor/s and nurses Not at all	Hospital/hospice doctor/s and nurses Not appropriate
Hospital/hospice nurse/s	Hospital/hospice nurse/s Very well	Hospital/hospice nurse/s Quite well	Hospital/hospice nurse/s Not so well	Hospital/hospice nurse/s Not at all	Hospital/hospice nurse/s Not appropriate
Community nurses	Community nurses Very well	Community nurses Quite well	Community nurses Not so well	Community nurses Not at all	Community nurses Not appropriate
Community grief counsellors/therapists	Community grief counsellors/therapists Very well	Community grief counsellors/therapists Quite well	Community grief counsellors/therapists Not so well	Community grief counsellors/therapists Not at all	Community grief counsellors/therapists Not appropriate
Local authority/council care workers	Local authority/council care workers Very well	Local authority/council care workers Quite well	Local authority/council care workers Not so well	Local authority/council care workers Not at all	Local authority/council care workers Not appropriate
Teachers and other school/college professionals	Teachers and other school/college professionals Very well	Teachers and other school/college professionals Quite well	Teachers and other school/college professionals Not so well	Teachers and other school/college professionals Not at all	Teachers and other school/college professionals Not appropriate
Voluntary sector organisations such as MacMillan, Marie Curie, Age UK, Carers First, Citizen's Advice	Voluntary sector organisations such as MacMillan, Marie Curie, Age UK, Carers First, Citizen's Advice Very well	Voluntary sector organisations such as MacMillan, Marie Curie, Age UK, Carers First, Citizen's Advice Quite well	Voluntary sector organisations such as MacMillan, Marie Curie, Age UK, Carers First, Citizen's Advice Not so well	Voluntary sector organisations such as MacMillan, Marie Curie, Age UK, Carers First, Citizen's Advice Not at all	Voluntary sector organisations such as MacMillan, Marie Curie, Age UK, Carers First, Citizen's Advice Not appropriate
Your faith leader and community	Your faith leader and community Very well	Your faith leader and community Quite well	Your faith leader and community Not so well	Your faith leader and community Not at all	Your faith leader and community Not appropriate
Funeral Director	Funeral Director Very well	Funeral Director Quite well	Funeral Director Not so well	Funeral Director Not at all	Funeral Director Not appropriate
Any other professional or organisation who gave you support	Any other professional or organisation who gave you support Very well	Any other professional or organisation who gave you support Quite well	Any other professional or organisation who gave you support Not so well	Any other professional or organisation who gave you support Not at all	Any other professional or organisation who gave you support Not appropriate

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* 7. What difference would these types of support from professionals and organisations make or have made to you?

	A lot	Some	Not much	None	Not appropriate
Listening and emotional support – sometimes called grief or bereavement counselling	Listening and emotional support – sometimes called grief or bereavement counselling A lot	Listening and emotional support – sometimes called grief or bereavement counselling Some	Listening and emotional support – sometimes called grief or bereavement counselling Not much	Listening and emotional support – sometimes called grief or bereavement counselling None	Listening and emotional support – sometimes called grief or bereavement counselling Not appropriate
Navigating your emotions – including stages of grief, reaching out for support, grief cafes, time in nature, rituals, faith etc	Navigating your emotions – including stages of grief, reaching out for support, grief cafes, time in nature, rituals, faith etc A lot	Navigating your emotions – including stages of grief, reaching out for support, grief cafes, time in nature, rituals, faith etc Some	Navigating your emotions – including stages of grief, reaching out for support, grief cafes, time in nature, rituals, faith etc Not much	Navigating your emotions – including stages of grief, reaching out for support, grief cafes, time in nature, rituals, faith etc None	Navigating your emotions – including stages of grief, reaching out for support, grief cafes, time in nature, rituals, faith etc Not appropriate
Support with understanding things like managing sleep, anxiety, appetite, physical pain, eating well etc. for the bereaved person	Support with understanding things like managing sleep, anxiety, appetite, physical pain, eating well etc. for the bereaved person A lot	Support with understanding things like managing sleep, anxiety, appetite, physical pain, eating well etc. for the bereaved person Some	Support with understanding things like managing sleep, anxiety, appetite, physical pain, eating well etc. for the bereaved person Not much	Support with understanding things like managing sleep, anxiety, appetite, physical pain, eating well etc. for the bereaved person None	Support with understanding things like managing sleep, anxiety, appetite, physical pain, eating well etc. for the bereaved person Not appropriate
Practical everyday support such as with food or childcare	Practical everyday support such as with food or childcare A lot	Practical everyday support such as with food or childcare Some	Practical everyday support such as with food or childcare Not much	Practical everyday support such as with food or childcare None	Practical everyday support such as with food or childcare Not appropriate
Support with putting the person’s affairs in order, such as planning funerals, wills and belongings	Support with putting the person’s affairs in order, such as planning funerals, wills and belongings A lot	Support with putting the person’s affairs in order, such as planning funerals, wills and belongings Some	Support with putting the person’s affairs in order, such as planning funerals, wills and belongings Not much	Support with putting the person’s affairs in order, such as planning funerals, wills and belongings None	Support with putting the person’s affairs in order, such as planning funerals, wills and belongings Not appropriate
Being offered a place or space to get together with other people who are bereaved	Being offered a place or space to get together with other people who are bereaved A lot	Being offered a place or space to get together with other people who are bereaved Some	Being offered a place or space to get together with other people who are bereaved Not much	Being offered a place or space to get together with other people who are bereaved None	Being offered a place or space to get together with other people who are bereaved Not appropriate
Time and space away from work or school/college to grieve	Time and space away from work or school/college to grieve A lot	Time and space away from work or school/college to grieve Some	Time and space away from work or school/college to grieve Not much	Time and space away from work or school/college to grieve None	Time and space away from work or school/college to grieve Not appropriate
Financial advice and support	Financial advice and support A lot	Financial advice and support Some	Financial advice and support Not much	Financial advice and support None	Financial advice and support Not appropriate
Support from an organisation that works with my community	Support from an organisation that works with my community A lot	Support from an organisation that works with my community Some	Support from an organisation that works with my community Not much	Support from an organisation that works with my community None	Support from an organisation that works with my community Not appropriate

Other (please desribe)

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* 8. Do you feel you have particular needs that should be considered by professionals and organisations around your bereavement? For example

Faith or spiritual tradition

Race, culture and language

Gender

Age - Child under 18 years

Age - Young person 18 to 30 years

Age - Adult 30 to 65 years

Age - Older person 65 years plus

Learning difficulties or autism

Mental health challenges

Disability or long-term health condition

Family caring responsibilites

Other (please describe)

None of the above

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* 9. Are there especially distressing circumstances around your loss?

Suicide and assisted dying

Accidents or sudden illness

Death of a child or young person

Complex loss- maybe of more than one person

If you couldn't be there for the person but wanted to be

Following a potentially painful and distressing life-limiting condition

Addiction

Homelessness

Loss during estrangement

Collective loss eg Covid-19 pandemic / earthquake / war

Other (please describe)

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* 10. What sort of information would be or have been most helpful around bereavement? Please put in order of usefulness

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* 11. There is a proposal to offer a counselling service around bereavement for people in Waltham Forest, Redbridge and West Essex.

Some ideas about a service currently being considered include those set out below.

As someone who is currently preparing for bereavement or who has been bereaved, how much would each of these help you or have helped you?

	A lot	Some	Not much	None	Not applicable
Six sessions of one-to-one bereavement counselling for adults	Six sessions of one-to-one bereavement counselling for adults A lot	Six sessions of one-to-one bereavement counselling for adults Some	Six sessions of one-to-one bereavement counselling for adults Not much	Six sessions of one-to-one bereavement counselling for adults None	Six sessions of one-to-one bereavement counselling for adults Not applicable
Six sessions of child-appropriate bereavement support for children such as art therapy or play therapy	Six sessions of child-appropriate bereavement support for children such as art therapy or play therapy A lot	Six sessions of child-appropriate bereavement support for children such as art therapy or play therapy Some	Six sessions of child-appropriate bereavement support for children such as art therapy or play therapy Not much	Six sessions of child-appropriate bereavement support for children such as art therapy or play therapy None	Six sessions of child-appropriate bereavement support for children such as art therapy or play therapy Not applicable
Six sessions of family bereavement counselling	Six sessions of family bereavement counselling A lot	Six sessions of family bereavement counselling Some	Six sessions of family bereavement counselling Not much	Six sessions of family bereavement counselling None	Six sessions of family bereavement counselling Not applicable
Group activity sessions for young people	Group activity sessions for young people A lot	Group activity sessions for young people Some	Group activity sessions for young people Not much	Group activity sessions for young people None	Group activity sessions for young people Not applicable
Information about wider support available during and after the sessions	Information about wider support available during and after the sessions A lot	Information about wider support available during and after the sessions Some	Information about wider support available during and after the sessions Not much	Information about wider support available during and after the sessions None	Information about wider support available during and after the sessions Not applicable
Bi-memorial events offering young people the opportunity to remember a person they lost through a creative memorial event suitable for young people of all ages and cultures	Bi-memorial events offering young people the opportunity to remember a person they lost through a creative memorial event suitable for young people of all ages and cultures A lot	Bi-memorial events offering young people the opportunity to remember a person they lost through a creative memorial event suitable for young people of all ages and cultures Some	Bi-memorial events offering young people the opportunity to remember a person they lost through a creative memorial event suitable for young people of all ages and cultures Not much	Bi-memorial events offering young people the opportunity to remember a person they lost through a creative memorial event suitable for young people of all ages and cultures None	Bi-memorial events offering young people the opportunity to remember a person they lost through a creative memorial event suitable for young people of all ages and cultures Not applicable

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* 12. Is there was some other kind of support that could or would have made a big difference to you around being bereaved, what would it be?

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* 13. How would you generally prefer your support to be offered?

Online - Zoom or video call

In person - hospital or GP practice

In person - community centre, school or library

In person - outside, walk in the park

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* 14. Would you generally prefer your support to be:

One to one

In a group

As a family or friendship group

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* 15. Would you generally prefer your support to be:

During the day time

During the evening

At the weekend

No preference

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* 16. Would you be interested in being further involved in our engagement work as we develop these plans for a new bereavement service?

This might involve something like being invited to attend a discussion group on particular aspects of your experience or being asked to comment on service proposals as they develop, either online or in person.

Yes

Help shape bereavement services across Waltham Forest, Redbridge and West Essex

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* 1. Which area do you live in?

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* 2. Is the person who is dying or who who died your...?

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* 3. How long have you been bereaved?

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* 4. Do you or did you feel supported by friends and family following the death of the person you were close to?

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* 5. What would make or would have made the biggest difference to you from friends/family/community at the time?

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* 6. Do you or did you feel you were supported by professionals or organisations in the lead up to and following the death of the person close to you?

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* 7. What difference would these types of support from professionals and organisations make or have made to you?

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* 8. Do you feel you have particular needs that should be considered by professionals and organisations around your bereavement? For example

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* 9. Are there especially distressing circumstances around your loss?

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* 10. What sort of information would be or have been most helpful around bereavement? Please put in order of usefulness

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* 12. Is there was some other kind of support that could or would have made a big difference to you around being bereaved, what would it be?

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* 13. How would you generally prefer your support to be offered?

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* 14. Would you generally prefer your support to be:

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* 15. Would you generally prefer your support to be:

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* 17. If so, please provide your email address.