Action for M.E.

On Sunday, the M.E. community all across the world joined Anna for the Blue Sunday #TeaPartyForME2024. We loved seeing all the photos of you joining in the fun and enjoying tea and cake! Anna’s incredible fundraising total currently stands at over £17,000 including over £1,400 for Action for M.E. We are so grateful to Anna and to everyone who took part in #BlueSunday2024 to help us raise awareness of #MECFS and vital funds for #pwME. There is still time to donate! Head to Anna’s fundraising page: https://ow.ly/hUYA50QKJ1H #MyalgicE #MyalgicEncephalomyelitis #LivingWithME

The All-Party Parliamentary Group on ME (APPG) has launched its inquiry into Severe ME. Action for M.E., the ME Association, and the 25% M.E. Group will be working closely to support the APPG throughout the inquiry and gather evidence from people with ME. 🔗 Read more: https://lnkd.in/ePnnbCbv

The Action for M.E. staff team hosted a virtual #TeaPartyForME2024 for #BlueSunday2024! There is still time to donate and raise vital funds for #pwME. Anna has so far raised an incredible £8,000 and counting for ME charities across the world. To donate, visit: https://ow.ly/hUYA50QKJ1H #MECFS #MyalgicE #MyalgicEncephalomyelitis #LivingWithME

Join us today for the Blue Sunday #TeaPartyForME2024, as we drink tea, eat cake and gather online to chat and raise funds for charities across the world that support #pwME. You can donate to Anna’s fundraising page here: https://ow.ly/hUYA50QKJ1H Don’t forget to tag us in your photos and follow the hashtags #BlueSunday2024 and #TeaPartyForME2024 to join the community! #MECFS #MyalgicE #MyalgicEncephalomyelitis #LivingWithME

There is only one day to go until the Blue Sunday #TeaPartyForME2024! Join Anna Redshaw and Action for M.E. tomorrow for #BlueSunday2024, and enjoy a cup of tea and slice of cake whilst raising vital funds for M.E. charities across the world. To donate, visit Anna’s fundraising page and ask your friends and family to join in too: https://ow.ly/hUYA50QKJ1H For information about how to take part, visit: https://ow.ly/Wle950Rl1kj We are looking forward to seeing you there! #pwME #MyalgicE #MyalgicEncephalomyelitis #LivingWithME

We have released a summary following our CEO, Sonya Chowhury, meeting with the Minister for Disabled People, Health and Work, Mims Davies MP. The meeting follows interaction Action for M.E. had with the Minister around a recent parliamentary debate on PIP reform, and builds on our wider engagement with the Department for Work and Pensions, having met with the Minister’s predecessor last year. Read more: https://lnkd.in/exuVFuDz We will also be sharing an update next week on an opportunity to feed into our organisational responses to the fit note reform, and PIP reform. #pwME #MECFS #MyalgicE

This #FundraisingFriday we are celebrating our amazing team of runners who ran the TSC London Marathon last month 🎉 Together, they have raised an astonishing £34,819 to support our work! We are incredibly proud of each and every one of our Action for M.E. team and cannot thank them enough for their dedication and effort 🧡 🔗 If you’re interested in joining Team Action for M.E. for the 2025 London Marathon, visit our website: https://ow.ly/Ogp650RFoqo

📢 Medical student ME/CFS essay competition winner announcement 📢 Learn about ME partners Action for M.E., MEAction Scotland, ME Association, and Dr Nina Muirhead are delighted to award the first prize of £250 to Bhanu Wahi-Singh, a fifth-year medical student at The University of Edinburgh! 🎉 Read more: https://ow.ly/Fisr50RHYK0 Congratulations Bhanu and thanks to everyone who entered the competition, funded by the Scottish Government, as part of the Learn About ME project. 👏

Three peaks. Three causes. 24 hours? 🏔️⏱️ No problem. In the early hours of World ME Day, Sunday 12 May, Led by Joe Lyons, CEO of the West Ham United Foundation, three teams reached the summit of Snowdon, completing their staggering challenge, having conquered the highest peaks in Scotland, England, and Wales in under 24 hours: a challenge covering over 23 miles and 3,000 meters of vertical ascent. The teams climbed through night and day, snow, rocks, and broken boots, but spirits remained high throughout the challenge, helped by clear skies, breath-taking scenery, and the three amazing causes they were walking for. The Three Peaks Challenge may be complete, but the fundraising challenge continues. Any donation, big or small, will go towards helping to improve the lives of people with ME, and unlocking the potential of young talent. 🔗 You can find the donation page here: https://ow.ly/IfeB50RG6JJ From all of us here at Action for M.E., West Ham United Foundation, and LTSB – a huge thank you and congratulations to the three teams and everyone who has helped to make this challenge possible. #HammersHeroes #ThreePeaksChallenge #Charity

We are planning a feature in our membership magazine, InterAction, about how we explain ME to others, and we’d love to hear from you! Do you have any feedback or suggestions on how you describe or explain ME to others? Are there any words and phrases that you find most helpful when explaining ME or describing your symptoms? Do you find analogies, such as the spoon theory, helpful? Equally, are there particular words or phrases that you find least helpful, or wish people didn’t use when talking about ME? Share your thoughts with interaction@actionforme.org.uk. Let’s help each other be heard. **Please note that by providing feedback, you are giving your consent for us to use your words should we wish to feature them.** #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis #LivingWithME