Autism and ADHD Assessment and Diagnostic Service

Hard to navigate! Not suicidal so have been refused a referral. So frustrating. Looks like I’m going to have to just deal with it with no help.

Hard to log in so frustrating. Hard to understand especially if you’re testing for ADHD. I’ve completed it all wrong therefore I’m not entitled to do it again.

This feels unhelpful to me in every way. I completed the DO IT profiler but I feel no clearer about what happens next, if I am considered eligible for an assessment, what my next steps should be and if it is worth me looking towards exercising my Right To Choose rights. To be screened out instantly because I am not suicidal or subject to court proceedings was really unhelpful. I have no understanding of what is meant when they say everyone who completes the profiler will be on a list based on needs because it just isn't explained, and there is no obvious thing saying whether or not you screener makes you eligible in future or not. I understand that waits are long and demand is significant, but at least some clarity regarding the report/its implications would be appreciated.

the fact that there are two questions in which your denied an assessment if you're not in court proceedings or not going to harm yourself or someone is a joke.

Because I'm not suicidal I can't get an assessment! Despite all the other problems that seem to be overlooked and not classed as important!

So unless you state you are suicidal, or require an assessment for legal purposes, the profiler refuses an assessment after four questions - and even if you score highly with certain traits, it provides you with a help sheet that is no way a substitute for a professional assessment. Just be honest, you’ve decided that you want everyone to go private or suffer in silence

I scored highly for ADHD, Autism and Dyscalculia and received no referral. I have waited so many years to gain the confidence needed, to talk to a doctor to finally discuss what may be going on with me. Then to be given an on line profiler that only refers people whose life is a danger or danger to others, and ignore the persons that desperately seek a diagnosis. What is the point in the profiler to be assessed neurodiverse but then provide no route to diagnosis. I am utterly disappointed and lost at what to do now. This scheme is a huge let down.
I went back to my doctor to ask what happens now to be told - they cannot do anything because the profiler did not refer me to the retreat.

I was asked to complete the Do-It profiler. As I don't consider myself suicidal or that it severely impacts my day to day life, I am not being referred for an assessment. After complaining to the decision makers, they recommend I go back to the GP. The GP told me there was no other way to get referred and that the only option is to go private
I have asked for an assessment, the reports show high results for autism amongst other things and have no medical professional to discuss this with. It is incredibly invalidating. After 30 years, I finally plucked up the courage to contact the GP for an assessment to be told no.

The Do It Profiler site is not terrible, however the fact that the 'acceptance criteria' is four questions about whether you're in crisis, and if you're not then you get no referral, *is* terrible.

Anyone scoring 3 or 4 on any of the sections in the Neurodiversity Screener ought to be offered an assessment, in my opinion, as they clearly have some issues in their lives that deserve assessment for treatment.

Also the disclaimer that "Note: The Do It Profiler itself does not make decisions on who is accepted or not for referral." doesn't ring true. It feels like that's exactly what it does.

I spent approximately 2 years on the waiting list before COVID hit and as I wanted an in person appointment had to wait until after COVID.
Finally I was told I was close to getting an appointment and would I fill in some forms.
Upon receipt of the forms it was very clear to me that I would struggle to complete them. As usual I put them out of my mind and didn't fill them in.
I was again contacted regarding the forms and I explained that I was unable to fill them in as my mind goes blank or I just cannot decide on an answer.
Again the thought of filling in the forms was overwhelming despite being advised to do best.
I was again unable to start them let alone complete them.
Upon being contacted by the team again I was given the ultimatum to fill in and return the form within two weeks otherwise my referral would be ended.
So finally I was removed from their list and received no help or diagnosis.
My inability to complete forms, and other issues, is all part of why I was originally referred.